What an awesome night! Although little man didn't go to sleep until after 11pm, he slept until about 8am. Woke up once a little uncomfortable and was given some Tylenol. Then he decided to play, smile, and laugh for a little bit. He woke up at 8am coughing, gagging, arching his back- the cardiology fellow was in here. FINALLY, someone to see what he's doing when he's refluxing, which she said was classic. So he's already on Prilosec they're adding Zantac so I HOPE this helps him.
They have turned off his oxygen, its been off for 2 hours :) They have left the tubing on him just in case they need to turn it in when he is sleeping... But he's been asleep now for 25 minutes and holding those numbers up there!!! Time will tell but this is AWESOME. In the past he would start dropping his oxygen saturations fast and have periods of apnea.
Momma is taking a break this afternoon and going home to see Eli. I miss him like crazy ❤❤❤❤❤❤❤❤❤❤❤
Well hopefully we have the video swallow study early in the week and we can get the heck out of here!!!! Whahoooo