Sunday, August 26, 2012

Baby Steps...

What an overwhelming sense of love and support! Thank all so much for your kind words. Ethan certainly has a fan club! We need the support more than ever. I'm so glad everyone has been so understanding we are so thankful for all our family and friends!

We take 2 steps forward and maybe 1 back.. He is really learning how to coordinate to eat, but it's the night feedings continue to be an issue. He doesn't always take all the bottle. Most people would be like, so he isn't hungry. I wish it were that easy. He is very sleepy, he would sleep the entire day if no one stimulated him. This is due to his heart defect. He just gets tired so easily. So we do eye and mouth care, change his diaper to wake him, then he is too tired to eat. We try to feed him first, then he just sleeps. Its a never ending battle.

Matt stayed home today to give Eli some direct attention. Poor guy doesn't know what to think. I believe he is taking everything very well, but he doesn't know any better. "Ethan has been getting some extra rest before he comes home, so the nurses at staking extra special care of him..." This is what I told Eli last night, then of course he fires back... "Well mommy, then he needs to come home so you can take care of him, you're his nurse and I can be your big helper..." Exactly!

So I'm completely exhausted!!! I can only hope for baby steps at this point. Tomorrow us going to be a busy day. We will see all his practitioners and ancillary staff. Matt is going back to work this week, so he can take time off for when Ethan's comes home!




4 comments:

kim jenkins said...

Renee....I have always loved u sooo much. I am so proud of you for doing this blog. Ethan is truly a gift from God and you will truly be amazed by how many lives he will touch!!!! You have two beautiful children, a wonderful loving husband, and a heart bigger than anyone can imagine!!!! would love to come see you guys when he gets home!!!! Praying for u that it will be soon....love u. kim

Becca said...

Congratulations on your sweet boy!! I look forward to reading more about him. :-)

Rebecca (from BabyCenter)

blw said...

Renee - there are special people put on this earth to do special things. You are one of those special people. I know that with your will and determination- everything is going to be okay. I am so proud of you, love you and you know I'm here whenever you need me.

Jessica said...

You can pretty much throw everything out the window that they teach you in those baby classes about hunger cues, feeding, etc., I remember bringing Madison home, and after 4 hours, she would still be in a deep sleep. People would be passing her around holding her, and I would insist on having her back to feed her. People would say "She isn't hungry yet, Jess." They just didn't get it. It was very difficult to make people understand she would sleep the entire day away, that she wasn't going to wake up when she was hungry and give me hunger cues. We tried every trick on the book-stripping her naked, putting cold rags on her, etc.., and sometimes she still would not wake up to eat. That first month was extremely hard to wake her up. She would have probalby starved herself to death if i had waited for her to show me a sign.